BoA - Your Color (Instrumental)

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Friday, November 12, 2010

My first step

I started walking only 4-5 months after my birthday,i was about 16 or 17 months old and walked out of my first step in life. Still there's no signs indicated that i may be suffering from DMD.

I uttered my first word when i was 2 years old plus,addressing my parents. Being the only child they had, they doted on me alot. Until things took a nasty turn,when i grew up to the age of 5. First, my Dad thought i was replicating how my mum was walking and argued over that. But later they saw the way i climbed up the staircase,i was using only my right foot. Holding on to the railings,step by step i climbed up the stairs. Huff, it was tough.

Soon enough we when to a specialist in Tan Tock Seng Hospital, that time before the current TTSH was built. It was the formal TTSH, before 1903, then. We were then arranged for an appointment to run a blood test at National University Hospital NUH, in short , officially opened in 1986.

After the test were carried out on the blood samples obtainied from me and my parents, results revealed that my mum was the carrier for DuchenneMuscular Dystrophy. My parents, especially my Mum were angry, they thought that that was just an assumption by the doctors. That was devestating for them. They simply could not accept the sad truth, "no way that's bullshit" they thought.

The dotors told us there was'nt any cure for DMD for the time being, but hoping that medical researcher may come up with a cure in the time to come.
Hmm... ... Fat hope ,i guess!

Like most kids i went on to kindergarten, where i learnt to read and write, made friends with normal kids. We knew nothing about the severity of the condition, that only became more and more obvious as i was near primary one. Still, we hoped for a miracle to happen, that one day there may be a cure for DMD but till the present day, that never ever come true.
I still remembered, there was once i was asked to participate in a games day,one of it was a game called "bean bag scramble" where the class was divided into two teams and tell them to go on opposite sides.

An odd number of bean bags were placed on the other end (spread out to avoid collisions). At each end of each sides was a box or bin.
The children have to run to the end, grab a bean bag and take it back to put in their team’s box, run back and do it again. Once all the bean bags are in goals the children count how many they have. The team with the most bean bags wins.

But the way i ran, made the other children mocked at me. The other kids parents were there too, their reaction made me felt really discomforted. I think my mum should felt the same too,since she was there too.

I need help even to remove wrapper from a sweet, and had difficulties putting together, and seperating the bricks apart when i played lego.
As i grew up, my muscle got weaker.

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